Will They Open My Chest?
It has been two years since Zachary's Fontan surgery and he has grown into a healthy, happy little boy. Still, we are reminded the reality of his condition from time to time, and recently we have starting talking to Zachy about his special little heart. This morning he had his annual cardiology checkup way too early to be up and at it, so we slipped some clothes over his sleepy head and had him buckled into his carseat by 7:15. He snoozed soundly on our way across town, and when we got to the doctor's office I unstrapped my little dreamer and plopped him over my shoulder. When we got in the building, he woke up, and still a little dazed he asked,
"Where are we, Mommy?"
My big boy was getting heavy, so seeing that he was now awake enough to carry his own weight, I set him down, took his little hand, and explained,
"We're going to see your heart doctor today."
"Mommy," he asked, very bravely and matter-of-factly,
"Will they open my chest?"
His question took me by surprise and cut me like a knife. "No, sweet boy. They won't have to open your chest today. They're just going to take a look inside by running some tests to see how strong your heart is beating!" But I stopped short of promising they would never have to open his chest again.
Zachy cooperated pleasantly with the doctor and nurse as they ran test after test on his special little heart. He told them all about his new job of being a big brother, how he goes swimming, that he is going to school in the fall, and how he had a Spiderman birthday party. He held still with a smirky smile for his EKG and helped the nurse take his blood pressure and oxygen saturations. He picked out a movie to watch during his echocardiogram, and explained that Barney is for babies but Scooby Doo is okay, though it would be even better if they had a Jake the Pirate DVD.
And as I rubbed his little legs while the doctor poured meticulously over pictures of his quirky little heart, I couldn't help but think how far we have come and how lucky we have been. When all was said and done, Zachy's only complaint was that the EKG stickers were too darn sticky.
Everything looks good, the doctor assured us. No changes, no red flags. His fenestration (the little hole that acts as a pressure valve between his heart and lungs) is still open (it closes on its own in most cases,) but no action is required because his sats are so high (measuring 94% and 96% today.) The doctor told us to keep giving him daily aspirin, antibiotics before dental work, and reminded us that bowling or golf would be a good choice should he choose to participate in sports down the road. And then we were done... "See you back in a year!"
"Where are we, Mommy?"
My big boy was getting heavy, so seeing that he was now awake enough to carry his own weight, I set him down, took his little hand, and explained,
"We're going to see your heart doctor today."
"Mommy," he asked, very bravely and matter-of-factly,
"Will they open my chest?"
His question took me by surprise and cut me like a knife. "No, sweet boy. They won't have to open your chest today. They're just going to take a look inside by running some tests to see how strong your heart is beating!" But I stopped short of promising they would never have to open his chest again.
Zachy cooperated pleasantly with the doctor and nurse as they ran test after test on his special little heart. He told them all about his new job of being a big brother, how he goes swimming, that he is going to school in the fall, and how he had a Spiderman birthday party. He held still with a smirky smile for his EKG and helped the nurse take his blood pressure and oxygen saturations. He picked out a movie to watch during his echocardiogram, and explained that Barney is for babies but Scooby Doo is okay, though it would be even better if they had a Jake the Pirate DVD.
And as I rubbed his little legs while the doctor poured meticulously over pictures of his quirky little heart, I couldn't help but think how far we have come and how lucky we have been. When all was said and done, Zachy's only complaint was that the EKG stickers were too darn sticky.
Everything looks good, the doctor assured us. No changes, no red flags. His fenestration (the little hole that acts as a pressure valve between his heart and lungs) is still open (it closes on its own in most cases,) but no action is required because his sats are so high (measuring 94% and 96% today.) The doctor told us to keep giving him daily aspirin, antibiotics before dental work, and reminded us that bowling or golf would be a good choice should he choose to participate in sports down the road. And then we were done... "See you back in a year!"
| He's our little firecracker! |

Great update! Good news! Thank you for the update!
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